Wednesday 9 May 2012

Crushed hope revived


It was in the salty sea breeze
That caressed my face ever so gently
That blew away crushed hope
That I heard of revival
It was far away on the horizon
On the cusp of rolling waves
And foaming deep green embers
The unfolding of eternity's space
The endless of time
Destiny uncovered once again
It was in that moment of silence
That I heard


Tuesday 8 May 2012

Super Optimism And Coping With Chronic Illness


One of the basic coping strategies with living with chronic debilitating illness is the psychological well-being of the sufferer. After medications have been administered, lifestyle changes sought and support given by friends and family, there is a need to reach deep within. There is a need to tap into whatever shred of optimism or positivity you have and find ways and means to multiply it exponentially. For this will be the difference between living a life, and merely existing.
In my personal experience, nothing has ever dehumanised me as finding myself with physical incapacity and needing assistance from others. Nothing has made me feel more humiliated  than being forced by my disabilities, to adopt a strange and often abnormally slow gait as I struggled to move from one place to the other. There is no faster way of knowing what the sum total of humanity with all its foibles and vanity really is.
After I joined a support group, I met many people who's conditions were far worse than mine was. Some were born with disability, and have not known any other way of living. Some like me had it foisted on them at some point in their lives. Many are the bravest people I know, and I was inspired to keep fighting. Their optimism was a strong common denominator, and this resonated with mine.

However, rising above the base level of the emotional and psychological difficulties that dis ability engenders, is  the only way to ensure longevity. Choosing to live, and literally focussing on living joyfully 'in spite' of disability is crucial to survival.
Some call it super optimism , what ever it is called, this is what I needed and finding it has given me great freedoms.

Notes on being wheelchair bound

Oh no!
The topic of discussion right from their car ride home from my friend's mouth will undoubtedly be the sight of me in a wheel chair at the airport. Her mobile will be ringing 'off the hook' as several calls will be coming through to ask for first hand details and discuss all the possible reasons. From now until some other scintillating news hits the grape vine, waves of this new status of mine this will be the hot new topic.
I must get used to this very quickly but I am just saying this to make myself feel better.
I dole out instant emotional counselling each time I meet someone I know. I have to re assure them that I understand how seeing me makes them grapple with their own mortality and frailty way ahead of expected time. I have to assist them with expressing and processing the shock.      

That is all   

Just messing about-wearing a parcel ribbon
......and then there are those who won't even look my way at all. Those who busy themselves with trolleys and staring at spaces where they expect their luggage to be soon. They look as though they are conjuring their bags to make an early entrance so they can hurry away. The laughter they were sharing with someone  a moment ago has died in it's tracks. They inspect imaginary things suspended from the ceilings and take a sudden sharp interest in the footwear they pushed on to their own feet that morning.

All very interesting, all still new.
 

Monday 7 May 2012

Order out of chaos



I spent a couple of hours with an elderly relative today and took it upon myself to de-clutter her dressing table while we chatted about all sorts of things and made loud comments about the programme that was showing on her TV. We ended up with a full carrier bag of junk, mainly wonky plastic bangles, several dead padlocks, twisted old ropes and strings, old keys, parts of things that could not be identified, as well as an empty manicure set, not to talk of a defunct battery operated nail grooming set from my many, many years back who's main parts were missing and the emery pad was disintegrating into powder! Just before this, I just about restrained her from jumping into the bath at 4pm to wash her hair because she said the centre was itching and she felt hot. So she agreed to spray the scalp with one of her myriad hair things and scratched it vigorously with one of about 12 gnarled plastic combs. She took my suggestion to postpone hair washing till she could go to the hairdressers the following day. However, I rescued a tuft of artificial hair from one tall beautiful green ceramic bowl with an elegant pointed cover. Under it was a relic of a suitcase strap. You will be surprised at the kind of stuff that we keep. After a while, they just become part of the scene in our lives and drop completely out of the radar of our attention.

On the table, there were also 3 bottles of that methylated dusting powder -you know the white canister made out of tin with brown skewed writing that has been produced since Mungo Park's time! She explained that there were three because one of her grandchildren might need one since she has skin issues too. With her provision of this emergency skin remedy service, who needs a dermatologist and prescription skin treatment?!
However, I was unable to remedy whatever she had done to her telly's colour balance that tinged all the images with a lurid orange, but I deleted her messages from DSTV as far back as nine months ago.

We had a good time and she did not let me leave before pressing into my hands a three pack set of body butter, vanilla, almond ,and I forget what. It is so lovely how we do that in our culture; give random unsolicited gifts -just because

When I first got married, I played an unspoken game with my hubby . Every time hubby straitened up an object to lie parallel to the centre table's edges, I would deliberately move it and make it slightly skewed. He would constantly keep straightening it up, and I would chuckle inwardly. Well, what can I now say about myself, now that I have become unable to leave someone else's cluttered dressing table alone? Why have I now re arranged her stuff in neat rows? She was very pleased, don't get me wrong, and grateful for the new look I gave it. However, to be honest, I realised that my motivation went far beyond wanting to help her out. I am sure now that I may have become 'OCD' about certain things.
Obsessive Compulsive Disorder in it's mild form appears to be on the increase. Is this a way in which we as humans are reacting en masse to the uncertainty and disorder in our world?
Was I in some way trying to arrange those things out of a compulsive  desire to bring order out of chaos, and why is it that I could not leave the mess alone as it was? But then again, is that not what God did at creation-bring order out of chaos? No! I am not looking for lame excuses-honest!

Skill sets and Defining moments-my thoughts on 1 Samuel 16


SAMUEL ANOINTS DAVID
At the time the Lord sent Samuel to anoint David, interesting things happened.............
Google images- David playing to the depressed Saul
  •  Saul had a problem with depression that David could fix just by playing skilfully on his harp. When David was learning to play his harp and developed his skill till he gained mastery, he had no prior knowledge that it would one day be the exact medicine that a depressed king would need. This is noteworthy that music has a role to play in shaping our minds.
  •  David's appearance was pleasing to Saul: Appearance and presentation matter, our physical body must be groomed and maintained for, sometimes, the Lord has given us our physical appearance so that we will be NOTICED for His purpose in us to fulfil an assignment.(Remember Esther?) 
  •  David's skill set met Saul's needs. We read David's C.V in 1 Samuel 16:18     
-skill full with harp
-brave
-warrior
-well spoken
-well presented
-spirit filled
  •  Now we see that: The Lord's plan was ALREADY SET to have David be the king. So, he ALLOWED David to get the training he would need.
  •  The Lord arranged this: (through what I like to call His 'God'-incidence) He set up an intern-ship, mentoring and a job shadowing programme for David, right at the place where David's key future role was to be.
  • He became Saul's armour bearer 
  • Remember also Moses? He had his training from birth! Also Joseph? He was sold into slavery and learnt at first hand, his future prime ministerial JD (Job Description)  from being first a slave serving in the home of Potiphar who was The Prime Minister at that time. Wow! These are nothing but 'God-incidences!' ,They just cannot be co-incidences.
  • All that had happened to David as outlined above, was a timely set up for what the Lord had already planned; The defeat of the Philistines in general and Goliath in particular, as well as the rest of the works David would do in his lifetime.
  • At the appointed time, when David had completed his training, the situation was like this:

Saul had passed his peak as a ruler and leader, the nation was in need of fresh blood in the leadership, the people had reached the height of discouragement due to the Philistine attacks.
Then....
GOD SWITCHED THE GEARS
... Through a chain of 'God'-incidences, the people of Israel were delivered and the brave new king was unveiled!

CONCLUSION:
It is all in the Lord's time that things will happen. Sometimes, it is when our skill sets have been developed as we endure the tough training of the knocks of life, that  a break through  happens. Then and only then will God SWITCH GEARS.

.... And all our 'God'-incidences which may present themselves as challenges, will unfold as defining moments of achievement!

Lara Cookey
Pondering on 1 Samuel 16
17 Nov 2009

Update (19Nov 2009)
Ephesians 1:11
In him we were also chosen, having been predestined according to the plan of him who works out everything in conformity with the purpose of his will.

(Further comment 24th Feb 2010)
The purpose of His will is that we are trained up in righteousness so that we can reflect the glory of our maker. We are to be walking, living,breathing examples of the Godly characteristics he deposited in us at our creation.
God looked at himself in us and said 'it is very good' (Genesis 1:31)

Sunday 6 May 2012

Be Joyful and patient, and pray even when everything sucks !

Sunday  06 May 2012
If ever I got to thinking that my victories came from my own strength, today I am reminded that this is not so. I re-discovered a command in scripture that I had underlined in my bible some time ago. I have a habit of writing scriptures that I want to take note of in my journal as well. Every now and again, I read past journals because I have come to appreciate the merit of reminding myself of useful past discoveries. These discoveries, scriptures, wisdom words, realisations have been in fact key elements in shaping my future.
I call it a command because the style in which it is written is directive and I honestly believe it to be something  I should  act on practically.
Romans 12: 11 and 12 say :
Never be lacking in zeal, but keep your spiritual fervour, serving the Lord.
Be joyful in hope, patient in affliction, faithful in prayer.

Today, I recognise how following this command has impacted the course and the outcomes of the hard to deal with stuff of my life. I think that reading, taking note of and internalising certain things, has made my brain store these things in a special way. There is this awesome power that God gives through His word as it comes back out from within you to act on your life. I may not remember specifically, what it says, or be able to quote it, but it is still active. This word must have entered into my internal operating system, it is the best kind of virus ever!
Google images
I rejoice this morning because the outcomes and benefits are so real and evident to me. So, I got into a serious boogie-down during praise worship at church today. When I got up and started clapping and dancing, smiling and displaying joyous celebration, it may have looked like a thing of the moment. It may have looked like following what everyone else was doing, but this was not so. I was celebrating  what has already been, I am just grateful . My worship on Sundays cannot be centred only on what I gain from the pulpit that day. I find that my spiritual diet between services greatly enhances what I receive on Sundays, and so today's service theme came alive for me: the true vine.

Thursday 3 May 2012

Dash 8 Air Travel



Google images
I was seated in the fourth row on board a twin-prop air plane parked on the hot, steamy tarmac at Kotoka International airport, Ghana, awaiting our departure to Lagos. Settled into the cosy comfort of the Dash 8 aircraft, I gazed out of my window looking past its huge propeller blades. I found myself right in the centre of various images and scenarios that an unfortunate exit out of the window into the propeller blades presented. It wasn't nice. Since there was very little physical distance between the propeller and me, I marvelled at the fact that, what separated me from a gruesome end was a double sheet of glass and the fuselage's outer skin. Man's inventions never cease to amaze me, and it is just completely inconceivable, the extremes in safety that this situation put me in. Seated in cushioned comfort on the one hand ;lights, air con, and service call controls an arm’s reach away, and then, sneezing distance away, a giant blender blade, whirring at high speed.
My train of thought was suddenly interrupted by the volume and tone of an obviously displeased man. 
“Rubbish! Nonsense! you people have come with your rubbish! I paid for first class! what do you mean its free seating!?” The tall, elegant, elderly, Naija businessman with an angular face, a trace of long ago tribal marks, and shiny bald head, yelled. His vocal capacity was such that we all knew for sure that his lungs functioned perfectly, and he had no voice projection issues. It was a minute or two before the owner of the lungs which powered the bellowing voice, arrived through the entrance door. The cabin steward stood at attention, his welcoming smile frozen in place now, and rapidly becoming distorted shortly afterwards as it began to decay. He had to remain pleasantly smiling for everyone else, but his internal organs were squirming as they reacted to the verbal arrows. "Good evening sir, you're welcome on boar...." he carried bravely on
"Rubbish! You people have come with your nonsense! I paid for first class!" was the reply the poor cabin steward got in return. I was amused, and there was more to come.
The Naija businessman sat down heavily in the aisle seat in the first row, brewing, stewing and bubbling out his anger, frustration and irritation into the atmosphere. He was in 'dress down mode', no bespoke tailored $5,000 dollar suit, but a crisp tan coloured, linen/ seer sucker mix shirt, buttoned down the front. It had a small lapel collar and at the hemline, there were little side nicks at each seam, creating a stylish detail. The casual shirt was close fitting enough to give a sharp silhouette but baggy enough to just skim the high point of his protruding belly, giving him a slimmer look than would at first be evident.
The poor cabin steward, (let's call him Albert )stepped forward to take (let's call him) Mr. Adesina's swish, obviously real leather ,designer hand baggage which was as large as the owner's ego. "Please let me take that sir, it is too big for the overhead cabin, we have to check it into the hol...."
Google images
" Arrant nonsense! I paid for first class!..... rubbish!, how can I pay for first class and you say I cannot keep my hand luggage with me! You people and your rubbish! I paid for first class! You have come again with your nonsense!" And these kind of volcanic verbal complaints went on for a while. Meanwhile, Albert was fast becoming a facial muscle contortionist. He did a jolly good job of smiling courteously at everyone else at exactly the same time, he smiled at Mr. Adesina with a show of deep concern as well.
A very large lady with an enormous pair of chests came panting on to the aircraft long after others had boarded, muttering to herself, but very loudly. Her various wraps, flailing sleeves and unravelling head scarf sort of floated in, after, and about her as though miraculously held up by gusts of wind. She had what looked like a small sofa hanging on her shoulder, it's weight dragging her ample shoulder downwards, while her mobile phone was hoisted over her ear with the free arm. She talked to the person on the phone as though addressing the people standing at the back of a large gathering one thousand strong. It was all in Yoruba, and a progress report stating her arrival on the aircraft. The free seating issue presented problems as she struggled up and down the aisles, trying to decide where to sit. She relinquished her 'hand baggage' to Albert to be put in the hold quite readily, while Mr. Adesina who had piped down a bit, was still proclaiming bitterly, but in a lowered volume, how he had been short changed.

Shortly afterwards, I noticed how with each bewildered looking face that got on board, there was a chorus of "it's free seating o!" from various people near the front. It was as though, Albert and his colleagues had instant co-workers. Unofficial cabin crew, of an indeterminate number, and had not signed in the duty rota for the flight. It is so typical of Naija's to take control of such situations. It was that unity we can drum up instantly, something I have witnessed at play again and again. With the underlying need to process the potentially de stabilising effects of yet another public service gaff, being helpful to others as they joined in the predicament and verbalising were vital tools which assisted folks in settling down faster.
Soon after, the man who sat on the seat right next to the emergency exit was being given his briefing by Albert. This reminded me of another flight I had been on months previously, where the air staff's similar script was constantly being interrupted by a passenger's bold interjections and prophetic assertions.....

Google images






I  watched as an air steward began to deliver his memorised lines with flair and ease, but his training could not have prepared him for what ensued. It went something like;
Cabin crew:"Sir, in case of emergen-" He was cut off sharply and abruptly.
Passenger: "Not on this flight!'....
Cabin crew: "If we are flying over water....." he was cut off again
Passenger: "I SAID, not on this flight!" This sharp retort delivered with an angular tilt of the head, inquiring and determined.
Cabin crew:"You turn this door handle in..."
Passenger:" I said it will NOT HAPPEN in Jesus name!" He barked back with a potent combination of anger, strong determination and passion. By this time, his eye balls were right on stilts, challenging the air steward to step down from what must have come across to him as 'pessimistic reports'. In the meantime, the lady seated next to me rocked back and forth like an emotionally disturbed child, mini bible in hand, her lips moving rapidly, muttering prayers for the success of the flight. Her babbling was mostly undecipherable but every now and then, it would crescendo with a gush of repeated, laboured exhaling and end with a loud "DJEE-SSUS!"
I was immediately nervous.
This did not bode well for the flight's safety. Perhaps this was a sign that I was remiss with my Godly connections, and therefore  had missed out somehow on the insight that prompted these outbursts.The cabin crew's automatically spewed out lines were eventually completed even though in competition with the objecting passenger's 'hallelujah interjections'. The effect was hilarious and it also prolonged the allotted time given for this standard briefing.

No other people can collectively have as marked an effect on aircrew's behaviour, scheduled flight times and safety procedures as us, Naijas!

Google images
Many years back, when I was a secondary school student returning to London after one of my school holidays in Lagos, I was on a flight which was stopped just after it started to taxi for take off. I kid you not, we had a live chicken- a poor distressed bird, squawking and running up and down the cabin aisle. Airport security was summoned mid runway, to get it off the aircraft. I do not know how the bird got past security checks!
Those were the days when your mother could walk you right up to the door of the aircraft just because the customs official had seen you crying. Now, your belt and shoes are demanded of you and the metal detector settings in the body scan doorway can pick up the metal of the fillings in your teeth or the underwire of your bra. I hereby warn the young men sagging their trousers as a current fashion trend to be especially careful when reaching this point. I imagine if they raise their arms to be body searched with the handheld probe after relinquishing their belts, they could with all probability find themselves standing in the security queue in their underwear. Their trousers having taken a quick gravitational dive due south. Meanwhile their baggy trouser's only restraining mechanism being at that point on its way through scanning paradise.
Easily accessible foreign media has made the dress style of 'sagging' acceptable to our youth, and a valid form of self expression. I wonder if most of our youth knew the genesis of it, they would  be so readily associated with it. Apparently, in the U.S prisons, trousers issued to inmates generally have  a huge waist size. There is no reference to the wearer's actual size, one size fits all. As well, so that they do not harm each other, or top themselves, they are not allowed to wear belts. So, of course, for most inmates, their trouser waists are too big. What is the connection with all this? The rappers and similar artists who are now glamorised and in the public eye have had some prison experience or other. They have somehow incorporated this into their dress style. Not surprising at all since this is the reality of their lives, but how is this any of the majority of our youth's?

Media, entertainment and the arts can press forward quite effectively, the transfer of socio- cultural norms and the subliminal conquests they achieve are faster and more pervasive than a million consulates filled with diplomats, attending cocktails, sipping vino and making speeches with veiled statements. Go to the far corners of the Caribbean,  where Nollywood films are easily available. This is the trend throughout West Africa where these movies are sold on many street corners . In fact don't go far, step across to Ghana where, 'tofiakwa!', a phrase meaning 'God forbid' in Igbo, a Nigerian language, has become common parlance. This now common slang emanated from these prolific Nollywood films.

Google images
The experience of air travel has been drastically transformed into a series of impositions of our personal space and liberties.
I  felt at high risk of picking up some fungal infection or other from the gummy floor I was forced to walk on with bare feet once, while my shoes travelled separately in a plastic tray through a scanning machine.  
The current requirements for one's travel attire and hand baggage would match the parameters for someone entering a mental institution as a self harmer. Such are the restrictions now placed on us by the stringent rules promoting anti-terrorism. Your thirst for even plain water must, according to the regulations be quenched by no more than 100 ml of water. I suppose this protects the society as a whole, but so many basic personal freedoms have been taken away as well.  Sometimes it feels like being herded like cattle. Our lives are gradually losing depth and dimension in some spheres, so much for the better quality of life that technology and modernity promised. But I digress........

Google images:Anti-terrorism strategy
Now back to my Dash Eight experience.
When we landed at Muritala Mohammed airport, it was far away from the finger which would bring us into the airport building.  Yes,it was a relatively long taxi to our final stop, but that was no excuse for our behaviour. As usual, my compatriots grew too impatient for us to reach our final stop. A cacophony of noise ensued as various mobile phone ring tones, volume enhanced phone conversations in different languages, a variety of eyebrow raising attitudes oozing into the atmosphere, and shuffling feet, all competed with the plane engine's wind down noise. The on board announcer's efforts to welcome us to Lagos were completely drowned out as well.
Madam 'wind gust' was on again in loud Yoruba giving her status report, ear cocked, twinkling eyes smiling into the phone....
"ello, ello, ello?, heeelooooo!, 'ello, 'ello?"
I wondered why she did not wait till we had stopped.
"Ello! We are here now, after this, we will get down and get our luggage." Hardly earth shattering info that could not wait a few more minutes!
There after there was an eruption, a chorus of various impatient sounds. The clink- clunking sounds of seat belts being un fastened, metal buckles hissing against sturdy ,woven fabric straps, people shuffling and jumping out of their seats. The air heavily laden with anticipation. Many were making a mad dash for the overhead lockers as though there was a known but unseen serial, hand luggage thief prowling about. The air steward's shoulders sagged , he exhaled heavily and looked exasperated.  He was still seated in his jump seat and strapped in. He did not stand but remained seated and quickly leaned forward to grab the announcer's hand set.
"Please remain seated and strapped in, the fasten seat belt sign is still on!" 
O my people! They looked at him as though he was a kill joy and speaking a strange language at that. By the time we had come to a halt, there were about half a dozen people crammed into the doorway area, itching to get out.
No one had time for any of the welcome pleasantries, for safety procedures or any such thing. The impatient twitchiness, anxiety laden behaviour and aggressive hunt down continues. A people's behaviour governed more by their experience and circumstances and not at all tempered by restraint and considered choice.

But as we say in Naija, 'na condition wey bend crayfish' (A clever Naija saying in pidgin English which translates to:Life happens)
Google images

Lara Cookey
Travel on  a Dash 8 aircraft
Nov 2009

Wednesday 2 May 2012

Different for a day


I am brimming with notes of a song to sing and don't know how i will sing it.
I am touching the skies and zooming to the universe
Bringing down with me new visions, new worlds and the heart of creative intelligence.
I am confident of what i see and bold to speak of it
I am joyous in my discoveries and shouting on the tops of their lungs the unspoken realms of their desire
When the vision dies, so do I, and I will never let this be
For I am constant to eternity to be faithful
No thing, nor circumstance will I allow to deter me from embracing with newness 
The defeat of my fears and sorrows and the amazing exceedingly joyful tomorrows.
Live it,
speak it,
Be it, I must,
Must dare to be different,
Even for a day.
Artwork by Bie Cookey titled 'Different for a day'-this title was the inspiration for the poem

Tuesday 1 May 2012

Abyss


I went to the edge of the abyss,
To gaze at all the stuff that had fallen away from me.
Where, all things that I wished for, had fallen into.
Google images
Where, they had fallen in, and plummeted down.
Their journey continues.
They are still hurtling on their way, to, I know not where.
There is yet more that will fall away.
Abyss, labyrinth, tortuous paths.
Stretching far away to unseen depths.
I have turned around.
Turned the back of my head,
To the abysmal abyss.
I have set my gaze on something else.
Full stop, no shifting, no changing.
My gaze is on something new!

inspired by Genesis 41:51..... God has made me forget all my trouble......

My Testimony

My Testimony 


Many years ago, I found myself experiencing random, apparently unrelated symptoms that were a major cause for concern, for which I got no respite; and these went on with increasing intensity until, a few years ago, I was disabled. I did not know it at the time, but it was to be a season. A period of great trial, severe testing for my family and me, a season that was to herald strengthening of our faith on new levels. A time when we asked questions with no answers coming. A time of fear, and concern for my early demise. 


If I were to convert to cash how many well meaning suggestions and comments that I have received asking me to pray for healing or seek it in a particular place or manner, I would be very wealthy indeed. For, if it were my confessions over myself, my prayers for healing over the last 25years, the people who have been praying for me, pastors, friends, family, I should have never faced all that I had. I came to realise that God can glorify himself even in a failing physical body and sometimes the thing to pray for apart from healing is 'grace to endure'. I realise that whilst my challenges were extreme from my perspective, every single person has some issue or other that is overwhelming and beyond their capacity to handle without some 'extra' intervention of some sort. This is what God allows, to build our faith and character so as to make us strong, just like a workout to keep good fitness and muscle tone.

In the midst of enduring all manner of challenges from breathing problems that took me to the emergency room for resuscitation  many times, to double and blurred vision, red inflamed eyes that hurt as bad as several needles stabbing my eyes at once, coupled with excruciating pain from the smallest ray of light, not to talk of difficulties with swallowing, chewing, talking, sitting up and walking. As well as vertigo, I  sometimes could not lift my hands to brush my own teeth, and needed wheelchair assistance at the airport. The catalogue of challenges was long and has spanned virtually all my life.They started very mildly, and then flaring up at different times, and increased to proportions that severely affected my mobility.

Through all this, I ran the full course of a whole gamut of emotions from anger to indignation, frustration, sadness and depression, all intensified by getting no answers from the various doctors I visited in 5 different countries! Everywhere, tests returned nothing significant. Besides the asthma issues which have been known since I was a child, almost every doctor indicated their belief that it was all in my mind and alluded to mental health issues. After a time, I began to believe them. But as things got worse, the stress and fear of imminent death, coupled with rapidly declining capability in carrying out basic tasks, drove me to panic at times.

But yet God in his mercy left me with a glimmer of hope which I clung to for dear life. I decided to seek God's purpose in all my challenges and simply asked Him to glorify himself in them. I determined never to give up as long as there was still a glimmer of breath in my nostrils. I decided to focus on the Love of God in Christ Jesus. I made joy my choice and sought many, many ways to live it out, sometimes I had to 'act it out' and 'behave' in direct opposition to my physical condition. There was always this disconnect between my mental/spiritual status and my physical. My analogy was that I was a formula one racing car trapped in a beaten up old small car. This made for frustration on mega levels. Frustration that came about when sometimes the very strategies  employed to keep positive, to continue to pay attention to my grooming and appearance, lead to the general impression that all was fine. That I was just being strangely fussy when asking for help, or not participating fully in various life activities. Being misunderstood like this was difficult to manage, I was once scolded by a friend and asked to get out of the wheelchair I was in at the airport. They felt that I was just being too lazy to walk. In fact this was a prime example of 'things are not as they seem'. Just like one cannot look at a group of people and tell who is challenged with what; diabetes or hypertension, etc.. So you can see someone with my challenges and not know, but for the sometimes obvious mobility issues.

There were times when I could not sit up for long enough to read my bible and it was too heavy for me to lift; doing tasks like cutting an apple or pouring a jug of water into a glass, and things like turning taps was difficult, and if I tried too hard, I would have serious breathing issues coupled with weakness for which I would have to lie down! Wow! Drop attacks were common. My legs would just spontaneously perform their own coup d'etat of my lower extremities! Many times I would lie on the floor laughing after these drop attacks, and ask myself how I got there. It wasn't a laughing matter I know, but I got to thinking crying or panicking, or being sad were poor substitutes. I decided not to allow these situations to bully me into the obvious reactions, mainly because I knew that once I was given to any of these, there would be no end, and I would just continue in a downward, endless spiral. I simply 'changed my mind' and my attitude to my physical ordeals.

At one point, I employed what I called 'laughter therapy' and refused to set my eyes on anything distressing and watched comedy for hours on end as well as listened to uplifting music. The God we serve is that powerful, that creative, that he put in my head the ability to opposite-speak, to keep cheerful, and to just refuse absolutely to give up. I even started teaching myself to write with my left hand, with the thought that if my brain was somehow shutting down, I would create new neural pathways. Also, I built in very mild exercises into my daily routine, and used them as a trigger to do simple repetitions. These took a lot of effort, and I often did not succeed, but I kept striving as my concern for my muscle weakness heightened.

The main thing that kept me going was the  recollection of all the scriptures, hymns and choruses that I had already known prior to being 'struck down'. The Lord even sent me my own songs which I sang to myself repeatedly. This is the nature of the God we serve, that music; including lyrics are sent to minister to the mind of someone like me, who found themselves in their own company for a very large proportion of the time. These songs could not have come from anywhere else but God himself, as I don't play any musical instrument.Their words ministered to me like nothing I have ever known. In one of such songs, the Lord gave me the words:

'Eternity itself is not big enough to contain the love I have for you'.


This together with the laughter therapy staved off depression and kept me focused on my erstwhile purpose of seeking God's glory in my predicament. Things got so uncertain and deteriorated till I started to prepare for death by telling my family what my wishes were and wrote a will to reflect this. Death became demystified for me, and I was still fighting for life with every bit of my being, but I knew that if God wanted to call me to himself, he would. My job was to prepare as best I could, and to make sure my family was prepared. It was as though my yielded-ness in regard to the possibility of being called back to my maker unleashed new tactics to destabilise and traumatise my family. The oppression from the fear of early demise was removed, and replaced with resignation and putting things in order. I started a massive tidying spree, labelling important things and writing reference lists of where everything was located, with the help of family and my house staff. It was like being the director of a movie, and I gave very focussed specific instructions, I got such clarity of thought and mind at this time. My challenges stepped up several notches and included new symptoms, and we came to accept that I was now disabled. My husband went about changing the taps in the house to models that were easy for me to use, and we all made several other adjustments both physical and psychological to accommodate my needs.

But yet God in His mercy, took my tiny bits of determination - my mustard seed faith and grew it to the heights that kept me going till I was led to a doctor who gave a diagnosis and have since been receiving treatment. What transpired was that I was moving from crisis to crisis mainly because we did not have a correct diagnosis, and therefore no treatment or management of the condition. I have come to accept my challenges and health condition, and have worked tirelessly over the last five years to understand it and manage this Myasthenia Gravis (MG) thing. My family have been absolutely marvellous, and have been very attentive to all my needs and the many 'briefing sessions' that I have given them to assist them in understanding all that was happening. I count myself blessed by this.

Portrait of me -Artist: Ibifagha Cookey
My conclusion is this: my life is not about me and what is easy or comfortable for me. My life is about God's purpose in all things that I am and He created me to be. I am committed to constantly seeking out new strategies to keep my mind, body and spirit strong, so that this earthly physical vessel will last for as long as the Lord deems it, so that my spirit man has a home to do the job He has called me here on mission for.

Update April 2012

Today, I am back to normal mobility. I still have occasional challenges, but airport wheelchair support is a thing of the past. I am now able to walk up and down, as well as run up and down flights of stairs with ease. I rode a bicycle again, attended a family gathering at Christmas, where I danced till the wee hours of the morning! I can now cook again and can braid my own hair without getting tired. All my slippers are back in regular use and I can even now wear heels for reasonable lengths of time. I have now been at rehabilitative physiotherapy for two and a half years. I started with gait training- yes, as in, learning to walk a straight line, and training up all my muscle groups! Now my physiotherapist-trainer says I am no longer a patient, but an athlete. I am jogging on the treadmill, swimming, and doing all kinds of core strengthening exercises that I could not do 20 years ago! I am extremely grateful to all the people who have supported me through this season of trial, especially my hubby who has not run away, but stayed the course of his own trial through this.
We celebrated our 25th wedding anniversary while I was still somewhat disabled with a trip to Beijing and Dubai, visiting places with wheelchair in tow! My doctor thought I was mad, and I refused to accept his pleas for me to consider a shorter trip with no layovers. We were determined to focus on the celebration of life. 
 
In Beijing on our 25th wedding anniversary




I am most grateful to my maker who allowed me the privilege of being 'spontaneously creative' and to 'shift my paradigms' as tools that equipped me to survive.